At Kennedy KriegersSchool Programs, the goal is to test 650asymptomaticstudents, teachers,and school staffeach week. Analysis included responses from 1643 guardians of pediatric patients (mean age 9.5 years, range 021.6 years). (2021) 11(9):1139. doi: 10.3390/brainsci11091139, Keywords: pandemic (COVID-19), pediatrics - children, rehabilitation, SARS CoV 2, neurodevelomental disorders, Citation: Vedmurthy P, Murray C, Chen B, Asiedu A, Baranano K, Bay M, Belcher H, Burton V, Conlon C, Fine A, Gill R, Harris J, Hart K, Inches S, Johnson J, Lance E, Lipkin PH, Menon DU, McIntyre T, Rajaprakash M, Recio A, Singer HS, Smegal L, Smith-Hicks CL, Vernon H, Wilms Floet AM, Wong J, Yelin K, Leppert MLO, Zabel TA and Comi AM (2022) Pandemic intake questionnaire to improve quality, effectiveness, and efficiency of outpatient neurologic and developmental care at the Kennedy Krieger institute during the COVID-19 pandemic. Funding comes fromtheNIH, which has awardedup to $33 million over two yearsforprojects at 10 institutions across eight statesas part ofitsSafe Return to School Diagnostic Testing Initiativeand through itsRapid Acceleration of Diagnostics Underserved Populations(RADx-UP)program. J Appl Psychol. Guardian responses from CARD had increased reports of worsening behavior (p=0.01). Contact Us | Washington State Department of Health Measures implemented by program directors to address COVID-19 concerns brought up in the pandemic intake questionnaire. Fifteen percent seen in the Center for Development and Learning reported an increased perceived risk for their children (i.e., yes or unsure); those from more medically complicated programs, i.e., Spine (59%), Other (58%), Sturge-Weber Syndrome (49%), Neurology (44%), and Neurogenetics (35%) clinics were 3.298.77 times more likely to report a perceived increased risk of contracting COVID-19 (Table2). Figure 2. Most people can manage COVID-19 at home with support from their GP. Reports for difficulty in accessing surgeries decreased over time. Regarding appetite, 4.98% (n=81) reported their child experienced worsened appetite. Clean frequently touched surfaces and objects daily. Covid . Phone: 13 42 68 You must have the heart, patience, understanding, and grit for this work. Front Psychiatry. Respondents from the Tourette's (8%), Spinal Cord (12%), and Sturge Weber syndrome (17%) clinic were 3.867.37 time more likely to report difficulty in accessing surgeries compared to respondents from CDL (3%) (Table2). Reports of worsening in behavior during the pandemic was significantly different across race and ethnicity (p=0.002), type of clinic (p=0.014), and across age (p=0.047). Our Tips for Home and Familiespage features an assortment of resourcesfrom our programs, including blog posts, read aloud videos, behavioral health tips, and more. Written informed consent from the participants legal guardian/next of kin was not required to participate in this study in accordance with the national legislation and the institutional requirements. Questions asked guardians to identify a worsening, improvement, or no change in quality of life due to the COVID-19 pandemic. By: Daily Record Staff The impact of the novel coronavirus disease 2019 on therapy service delivery for children with disabilities. These cookies do not store any personal information. State COVID-19 Information Hotline: Dial 1-800-525-0127, then press #. This study has important limitations. Avoid close contact with people who are sick. The clinics noted as medically more complicated include: Neurogenetics, Neurology, Spinal Cord Injury, Sturge-Weber syndrome, Epigenetics, Metabolism and the Sickle Cell clinic. Working at Kennedy Krieger Institute in Baltimore, MD - Indeed doi: 10.1016/j.jpeds.2020.12.060, 7. Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. CA Notify Hotline. Race, age, and clinic type were significant predictors, but not sex. Pandemic intake questionnaires were accompanied by text (Supplementary Appendix A) which explained to parents that providers would use the data to inform their care at their upcoming visit, and that de-identified information collected could be analyzed. Race and clinic type were dummy coded, with the largest groups (White children and the Center for Development and Learning, respectively), as the reference groups against which all other groups were compared. The 33 item Pandemic Intake questionnaire collected information regarding the impact that COVID-19 had on their health, medication, and treatment (see Supplementary Appendix A for COVID-19 questionnaire). Disruptions in their home and school routines, and restrictions accessing crucial healthcare services has had a significant impact. the contents by NLM or the National Institutes of Health. / CBS Baltimore. Kennedy Krieger Institute offers COVID-19 testing at its schools Three hundred and thirty-seven respondents (20.6%) agreed (yes) or were unsure if their child was at increased risk of contracting COVID-19. All authors contributed to the article and approved the submitted version. However, these other data were not from children with neurodevelopmental disorders. The complex, inter-related factors, unique to patients with neurodevelopmental disorders influence the impact of the COVID-19 pandemic. Families with infrequent access to email and non-English speaking families may have been less likely to participate. This de-identified database was stored on a secure Institute shared drive, and analyzed within IBM SPSS 27. Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). Five out of six found the Pandemic Intake questionnaire helpful in their care of their patients. Six of 7 program directors responded to a survey assessing their experience utilizing the Pandemic Intake survey (Table4). 1800 020 080. Twenty percent of guardians of CDL patients reported a worsening of behavior, while guardians of CARD patients (33%) were 2.05 times more likely to report worsening behavior, and respondents from the Spinal Cord clinic (3%) were 0.12 times less likely to report worsening behavior. Guardians of Black and African American (17%) and Asian (13%) children were 0.6670.486 times less likely to report worsening in behavior, compared to parents of White children (23%). Analyzing 2,589 child neurology telehealth encounters necessitated by the COVID-19 pandemic. Coronavirus Helpline India: Official Phone Numbers List 6 a.m. to 10 p.m. Monday. kennedy krieger institute (baltimore, md) This page shows COVID-19 capacity for hospitals in Anne Arundel County, Baltimore County and Baltimore city in Maryland The colored icons on the map below indicate the hospital's bed occupancy, but do not represent local hospitals surge plans to accommodate more patients. The impact of the novel coronavirus disease 2019 on therapy service delivery for children with disabilities. Impact of COVID-19 pandemic on utilisation of healthcare services: a systematic review. Kennedy Krieger leads a team that created new | EurekAlert! Helps to reduce your risk of developing coronavirus and makes your symptoms milder if you do Coronavirus (COVID-19): Treatments How to access coronavirus treatments if you're at highest risk Coronavirus (COVID-19): Longer-term effects (long COVID) Learn about the symptoms of long COVID and how you can manage them The Port Authority airports - Newark Liberty, LaGuardia, John F. Kennedy International, New York Stewart International and Teterboro were among the first and is the largest airport system to earn Health and Safety Accreditations from the world's leading airport trade organization, Airports Council International in November.. And we are thrilled to share, all five of the Port Authority . Sections. Department of Labor. In St. Louis,45 percent of children with disabilitieshave notreturnedto in-person instructionat the countys special education schools. Read the latest COVID-19 advice from our medical and public health experts. Chi-square analysis determined if responses differed between those in more or less medically complicated clinics. This was a cross-sectional study; further work is needed to understand implementation over time during the pandemic. The late senator's son discussed his skepticism about the safety and efficacy of COVID-19 vaccines, called Dr. Fauci "an abject failure," and shared the vaccine advice he'd give his mother. Before No use, distribution or reproduction is permitted which does not comply with these terms. 7 Articles, This article is part of the Research Topic, https://doi.org/10.3389/fresc.2022.934558, https://www.frontiersin.org/articles/10.3389/fresc.2022.934558/full#supplementary-material, Creative Commons Attribution License (CC BY). We aimed to systematically provide essential COVID-19 pandemic related information to clinicians before their visits with the family, and improve providers ability to deliver high quality care (8). A total of 3,153 questionnaires were returned with a 33.6% response rate (N=1,643; see Table1). HHS Vulnerability Disclosure, Help J Paediatr Child Health. SHARE. TOP. J Autism Dev Disord. Murphy A, Pinkerton LM, Bruckner E, Risser HJ. The virus can cause mild to serious illness, and even death. COVID-19: Safety & Visiting Guidelines | Kennedy Krieger Institute 3323412600. Some people don't finish that. Returning the questionnaire was voluntary and not required for the visit. (2020) 95(2):7784. Telemedicine is a safe and satisfactory alternative to in-person appointments and encourages patients to discuss their concerns relating to COVID-19 risk (13). 2 Departments of Physical Medicine and Rehabilitation, The Johns Hopkins University School of Medicine and the Kennedy Krieger Institute, Baltimore, MD, United States. 5.7% reported that this was due to asthma/other lung disease and 0.7 reported that was due to heart disease. Binary logistic regression identified significant predictors of guardian response; the statistical model included sex, age, race, and clinic type as covariates. COVID-19 business information | Business Victoria In a survey of medical providers, five out of six program directors who received the responses to this survey found this questionnaire helpful in caring for their patients. Murphy A, Pinkerton LM, Bruckner E, Risser HJ. The vaccination drive thru is scheduled for this Sunday, May 23at the outpatient parking garage of the Kennedy Krieger Institute. Program directors worked to address these concerns and there was a significant decrease in the number of respondents unable to access surgeries in the later months of the pandemic (September to December). The clinic offers a sensory friendly environment with minimal sights and sounds and a team of professionals on site to help calm fears of vaccination. Most directors (66.7%) made more referrals than before COVID-19 pandemic to address these concerns; including referrals to increase training children to tolerate masks, care coordination for resources, and to emergency department/ crisis center for behavioral concerns. 4 Central Florida Heart Care, Maitland, FL, United States. Guardians of patients from more medically complicated clinics were significantly more likely to report perceived increased risk of contracting COVID-19, and the inability to access surgeries and therapies. Contact us | Victorian Government - Victoria State Government A significant main effect for time (early vs. later pandemic) was only observed in the ability to access surgeries over time (p=0.027); more respondents reported difficulty accessing surgeries between May and August (39.4%) than between September and December (13.6%). FOIA Copyright 2021 Scripps Media, Inc. All rights reserved. COVID-19 vaccinations; Find out about other NHS services on NHS.UK. Wear a mask in public when community transmission is high, if you are unvaccinated and/or at high risk of severe illness. Contact Us. Press Release / March 17, 2020. COVID-19 (coronavirus) We successfully implemented a pre-visit Pandemic Intake questionnaire to quickly and systematically inform provider awareness of COVID-19 related patient concerns; the majority of program directors reported that this information helped them provide optimal care. Kennedy Krieger Careers and Employment | Indeed.com The impact of telehealth implementation on underserved populations and no-show rates by medical specialty during the COVID-19 pandemic, Evolving healthcare delivery in neurology during the coronavirus disease 2019 (COVID-19) pandemic, What is coefficient alpha? West Health Institute and Johns Hopkins University School of Medicine (2020). The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. A significant main effect for time (early vs. later pandemic) was only observed in the ability to access surgeries over time (p=0.027); more respondents reported difficulty accessing surgeries between May and August (39.4%) than between September and December (13.6%). They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. Our rehabilitation clinic is for children and adolescents under age 21 who have recovered from the virus but need additional support to regain lost neurological and physical function as a result of the illness. Call us on 13 77 88. Written informed consent from the participants legal guardian/next of kin was not required to participate in this study in accordance with the national legislation and the institutional requirements. Vaccine Hotlines - Contact Information / COVID-19 Updates and While the effects of COVID might not be as severe in most kids, doctors say there is a small group of kids who are not . Share by Twitter. West Bengal. This study reports worsened sleep in patients at CARD; previous research found patients with ADHD and ASD to report high rates of delays in bedtime, decreased sleep duration and increased sleep disorders (18). 8600 Rockville Pike Here's how pediatric treatment for long COVID works The COVID-Safety Venue Information provided is subject to change. COVID-19 Hotline (800) 722-5725. (2021) 11(3):e045343. Applications could be made either by calling 080060 10 11 or e-mail to grantenquiries@sassa.gov.za. OASAS HOPEline: New York State's 24/7 problem gambling and chemical dependency hotline. Guardians of patients seen at the SWS center (9%) were 2.4 times more likely to report worsened appetite then CDL patients (5%). Get browser notifications for breaking news, live events, and exclusive reporting. You can also call the COVID-19 Hotline at 888-535-6136 or email us at COVID19@michigan.gov. One of those clinics is located in Maryland at the Kennedy Krieger Institute in east Baltimore. Race, age, and clinic type were significant predictors; sex was not. The Institute's Health Information Management department received the completed questionnaires through automated emails from Qualtrics, and uploaded them to the EPIC health management system. These patients are at increased risk for impaired motor function, cognition, and social interaction, making them more susceptible to COVID-19 related complications (1). The Neurology clinic sees patients diagnosed with brain injury, leukodystrophies, Rett syndrome, stroke and epilepsy. Regarding sleep, 11.7% (n=191) indicated the child's sleep worsened during the pandemic (Table3). Guardians of patients in more medically complicated clinics reported perceived increased risk of COVID-19 (p<0.001) and inability to obtain therapies (p<0.001) and surgeries (p<0.001). The .gov means its official. They face significant disruptions to home and school routines, that can cause further declines in health outcomes, and limitations in accessing necessary healthcare and educational services (2, 3), which can further exacerbate their neurodevelopmental impairments. "I was either passing out or I was really confused and kind of delirious I didn't know what was going on I started having problems walking," she said. For patients at the Kennedy Krieger Institute, clinical care requires access to physical, occupational and speech therapy. A full factorial binary logistic regression (with interaction) determined whether responses differed between group (more vs. less medically complicated) and time of survey completion (early vs. later pandemic), and identified which factors drove statistical significant associations. To make a referral or request an appointment, contact Patient Access at 443-923 . Guardians from the Neurogenetics (38%), Other clinics (27%), and the Spinal Cord clinic (72%) were 2.6312.92 times more likely to report difficulty accessing therapies as compared to 17% (n=206) of those from CDL. Contact Us | National Multiple Sclerosis Society This project received acknowledgement from the Johns Hopkins Institutional Review Board. Our inpatient hospital continues to serve patients and is working hard to ensure the continued safety of our patients, families and staff members. Kennedy Krieger Institute, an internationally known, non-profit organization located in the greater Baltimore/Washington, D.C. region, transforms the lives of more than 25,000 individuals a year . COVID-19 Hospital Capacity of KENNEDY KRIEGER INSTITUTE in BALTIMORE Race, age, and clinic type were significant predictors, but not sex. Health Departments: Information on COVID-19 | CDC
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